Beliefs About the World and Coping Strategies in Siblings of Adults with Intellectual Disabilities: The Moderating Effect of Posttraumatic Growth
DOI:
https://doi.org/10.12775/PBE.2023.026Abstract
Research question: Is there a relationship between beliefs about the word and coping strategies in siblings of adults with intelectual disabilities (ID) and whether posttraumatic growth (PTG) moderates the association. Methods: One hundred and seventy-two siblings of people with ID were included in the sample. The main outcome measures used were the Post-Traumatic Growth Inventory (PTGI), the World Assumptions Scale (WAS) and the Coping Orientations to Problem Experienced (COPE).The studies were conducted in Poland. The associations between the variables were examined using correlation and moderation analyses. In the moderation model, beliefs about the world were posited as a predictor, PTG as the moderator, and coping strategies as outcome variables. Main results: Befiefs about the world were significantly associated with the different coping strategies. PTG (total score and indyvidual dimensions, except for spiritual changes) positively correlates with befiefs about the kindness of the world and has significant links with the various coping strategies. PTG moderates the association between befiefs about the world and coping strategies in siblings of adults with ID. Conclusions: Beliefs about the world and coping strategies are significantly related and their associations in moderated by PTG in siblings of adults with ID.
References
Arnold, C.K., & Heller, T. (2018). Caregiving Experiences and Outcomes: Wellness of Adult Siblings of People with Intellectual Disabilities. Current Developmental Disorders Reports, 5(3), 143–149, doi: 10.1007/s40474-018-0143-4.
Arnold, C.K., Heller, T., & Kramer, J. (2012). Support Needs of Siblings of People with Developmental Disabilities. Intellectual and Developmental Disabilities, 50(5), 373–382, doi: 10.1352/1934-9556-50.5.373.
Avieli, H., Band-Winterstein, T., & Araten-Bergman, T. (2019). Sibling Relationships Over the Life Course: Growing up with a Disability. Qualitative Health Research, 29(12), 1739–1750, doi: 10.1177/1049732319837228.
Brooks, M., Graham-Kevan, N., Lowe, M., & Robinson, S. (2017). Rumination, Event Centrality, and Perceived Control as Predictors of Posttraumatic Growth and Distress: The Cognitive Growth and Stress Model. British Journal of Clinical Psychology, 56(3), 286–302, doi: 10.1111/bjc.12138.
Burke, M.M., Fish, T., & Lawton, K. (2015). A Comparative Analysis of Adult Siblings’ Perceptions Toward Caregiving. Intellectual and Developmental Disabilities, 53(2), 143–157, doi: 10.1352/1934-9556-53.2.143.
Byra, S. (2019). Niepełnosprawność ruchowa w paradygmacie pozytywnie ukierunkowanym [Physical Disability in a Positively Directed Paradigm]. Lublin: UMCS.
Byra, S. (2017). Pozytywne zmiany w percepcji kobiet z nabytą niepełnosprawnością ruchową [Positive Changes in Perception Women with Acquired Physical Disabilities]. Roczniki Pedagogiczne, 9(3), 19–41, doi: 10.18290/rped.2017.9.3-2.
Byra, S. (2014). Nadzieja podstawowa i percepcja własnej niepełnosprawności a radzenie sobie osób z urazem rdzenia kręgowego [Basic Hope and Perception of One’s Own Disability and Coping in People with Spinal Cord Injury]. Hygeia Public Health, 49(4), 825–832.
Byra, S., & Ćwirynkało, K. (2020). Do Beliefs Influence Posttraumatic Growth in Fathers of Children with Intellectual Disabilities? Research in Developmental Disabilities, 104, doi: 10.1016/j.ridd.2020.103687.
Calhoun, L.G., & Tedeschi, R.G. (2006). The Foundations of Posttraumatic Growth: An Expanded Framework. In: L.G. Calhoun, & R.G. Tedeshi (Eds.), Handbook of Posttraumatic Growth. Research and Practice (pp. 3–23). New York: Erlbaum.
Carter, E.W., Carlton, M.E., & Travers, H.E. (2020). Seeing Strengths: Young Adults and Their Siblings with Autism or Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 33(3), 574–583, doi: 10.1111/jar.12701.
Davys, D., Mitchell, D., & Haigh, C. (2016). Adult Siblings Consider the Future: Emergent Themes. Journal of Applied Research in Intellectual Disabilities, 29(3), 220–230, doi: 10.1111/jar.12172.
Doody, M.A., Hastings, R.P., O’Neill, S., & Grey, I.M. (2010). Siblings Relationships in Adults Who Have Siblings with or without Intellectual Disabilities. Research in Developmental Disabilities, 31(1), 224–231, doi: 10.1016/j.ridd.2009.09.007.
Farrell, A.F., & Krahn, G.L. (2014). Family Life Goes On: Disability in Contemporary Families. Family Relations, 63(1), 1–6, doi: 10.1111/fare.12053.
Findler, L., & Vardi, A. (2009). Psychological Growth Among Siblings of Children with and without Intellectual Disabilities. Intellectual and Developmental Disabilities, 47(1), 1–12, doi: 10.1352/2009.47:1-12.
Floyd, F.J., Costigan, C.L., & Richardson, S.S. (2016). Sibling Relationships in Adolescence and Early Adulthood with People Who Have Intellectual Disability. American Journal on Intellectual and Developmental Disabilities, 121(5), 383–397, doi: 10.1352/1944-7558-121.5.383.
Hall, S.A., & Rossetti, Z. (2018). The Roles of Adult Siblings in the Lives of People with Severe Intellectual and Developmental Disabilities. Journal of Applied Research in Intellectual Disabilities, 31(3), 423–434, doi: 10.1111/jar.12421.
Heller, T., & Arnold, C.K. (2010). Siblings of Adults with Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 16–25, doi: 10.1111/j.1741-1130.2010.00243.x.
Henson, Ch., Truchot, D., & Canevello, A. (2021). What Promotes Posttraumatic Growth? A Systematic Review. European Journal of Trauma and Dissociation, 5(4), doi: 10.1016/j.ejtd.2020.100195Get.
Hodapp, R.M., Sanderson, K.A., Meskis, S.A., & Casale, E.G. (2017). Adult Siblings of Persons with Intellectual Disabilities: Past, Present and Future. International Review of Research in Developmental Disabilities, 53(1), 163–202, doi: 10.1016/bs.irrdd.2017.08.001.
Hodapp, R.M., & Urbano, R.C. (2007). Adult Siblings of Individuals with Down Syndrome Versus with Autism: Findings from a Large‐Scale US Survey. Journal of Intellectual Disability Research, 51(12), 1018–1029, doi: 10.1111/j.1365-2788.2007.00994.x.
Hodapp, R.M., Urbano, R.C., & Burke, M.M. (2010). Adult Female and Male Siblings of Persons with Disabilities: Findings from National Survey. Intellectual and Developmental Disabilities, 48(1), 52–62, doi: 10.1352/1934-9556-48.1.52.
Janoff-Bulman, R. (2006). Schema-Change Perspectives on Posttraumatic Growth. In: L.G. Calhoun, & R.G. Tedeshi (Eds.), Handbook of Posttraumatic Growth. Research and Practice (pp. 81–99). New York: Eribaum. Jeavons, S., & Greenwood, K.M. (2007). World Assumptions, Coping and Attributions. Personality and Individual Differences, 42(7), 1427–1437, doi: 10.1016/j.paid.2006.11.010.
Jurkiewicz, P. (2017). Rodzeństwo osób z niepełnosprawnością intelektualną. W drodze od osamotnienia do zaradności, zrozumiałości i sensowności [Siblings of People with Intellectual Disabilities. On the Way from Loneliness to Resourcefulness, Comprehensibility and Meaningfulness]. Warszawa. Wydawnictwo APS.
Kruithof, K., IJzerman, L., Nieuwenhuijse, A., Huisman, S., Schippers, A., Willems, D., & Olsman, E. (2021). Siblings’ and Parents’ Perspectives on the Future Care for Their Family Member with Profound Intellectual and Multiple Disabilities: A Qualitative Study. Journal of Intellectual & Developmental Disability, 46(4), 351–361, doi: 10.3109/13668250.2021.1892261.
Kunz, S., Joseph, S., Geyh, S., & Peter, C. (2018). Coping and Posttraumatic Growth: A Longitudinal Comparison of Two Alternative Views. Rehabilitation Psychology, 63(2), 240–249, doi: 10.1037/rep0000205.
Lee, C.E., Burke, M., Arnold, C.K., & Owen, A. (2019). Correlates of Current Caregiving Among Siblings of Adults with Intellectual and Developmental Disabilities. Journal of Applied Research in Intellectual Disabilities, 32(6), 1490–1500, doi:10.1111/jar.12644.
Lee, Ch., & Burke, M.M. (2018). Caregiving Roles of Siblings of Adults with Intellectual and Developmental Disabilities: A Systematic Review. Journal of Policy and Practice in Intellectual Disabilities, 15(3), 237–246, doi: 10.1111/jppi.12246.
Linley, P.A., & Joseph, S. (2004). Positive Change Following Trauma and Adversity: A Review. Journal of Traumatic Stress, 17(1), 11–21, doi: 10.1023/B:JOTS.0000014671.27856.7e.
Littleton, H., Horsley, S., John, S., & Nelson, D.V. (2007). Trauma Coping Strategies and Psychological Distress: A Meta-Analysis. Journal of Traumatic Stress, 20(6), 977–988, doi: 10.1002/jts.20276.
Moyson, T., & Roeyers, H. (2012). ‘The Overall Quality of My Life as a Sibling is All Right, But of Course, it Could Always Be Better.’ Quality of Life of Siblings of Children with Intellectual Disability: The Siblings’ Perspectives. Journal of Intellectual Disability Research, 56(1), 87–101, doi: 10.1111/j.1365-2788.2011.01393.x.
Orejuela-Dávila, A.I., Levens, S.M., Sagui-Henson, S.J., Tedeschi, R.G., & Sheppes. G. (2019). The Relation Between Emotion Regulation Choice and Posttraumatic Growth. Cognition & Emotion, 33(8), 1709–1717, doi: 10.1080/02699931.2019.1592117.
Orsmond, G.I., & Seltzer, M.M. (2007). Siblings of Individuals with Autism or Down Syndrome: Effects on Adult Lives. Journal of Intellectual Disability Research, 51(9), 682–696, doi: 10.1111/j.1365-2788.2007.00954.x.
Prino, L.E., Scigala, D., Fabris, M.A., & Longobardi, C. (2019). The Moderating Role of Gender in Siblings of Adults with Intellectual Disabilities. Interpersona: An International Journal on Personal Relationships, 13(1), 1–13, doi: 10.5964/ijpr.v13i1.323.
Rossetti, Z., & Hall, S. (2015). Adult Sibling Relationships with Brothers and Sisters with Severe Disabilities. Research and Practice for Persons with Severe Disabilities, 40(2), 120–137, doi: 10.1177/1540796915592829.
Rossetti, Z., Harbaugh, A.G., & Hall, S. (2018). Patterns of Adult Sibling Role Involvement with Brothers and Sisters with Intellectual and Developmental Disabilities. Journal of Developmental and Physical Disabilities, 30(4), 527–543, doi: 10.1007/s10882-018-9600-6.
Rossetti, Z., Lee, E., Burke, M., & Hall, S. (2020). Perspectives About Adult Sibling Relationships: A Dyadic Analysis of Sibling with and without Intellectual and Developmental Disabilities. Research in Developmental Disabilities, 96, doi: 10.1016/j.ridd.2019.103538.
Scigala, D.K., Fabris, M.A., & Longobardi, C. (2020). The Relationship Between Personality Traits and Coping Strategies in a Sample of Siblings of People with and without Intellectual Disability: The Mediating Role of Sibling Relationship Quality. The Open Psychology Journal, 13(1), 101–114, doi: 10.2174/1874350102013010101.
Stanisławski, K. (2019). The Coping Circumplex Model: An Integrative Model of the Structure of Coping with Stress. Frontiers in Psychology, 10, 1–23, doi: 10.3389/fpsyg.2019.00694.
Tedeschi, R.G., Calhoun, L.G., & Cann, A. (2007). Evaluating Resource Gain: Understanding and Misunderstanding Posttraumatic Growth. Applied Psychology: An International Review, 56(3), 396–406, doi: 10.1111/j.1464-0597.2007.00299.x.
Trzebiński, J., & Zięba, M. (2003). Kwestionariusz Nadziei Podstawowej – BHI-12 [Basic Hope Questionnaire – BHI-12]. Warszawa: Pracownia Testów Psychologicznych PTP.
Trzebiński, J., & Zięba, M. (2004). Basic Hope as a World-View: An Outline of a Concept. Polish Psychological Bulletin, 35(3), 173–182.
Wilson, C.J., McGillivray, J.A., & Zetlin, A.G. (2008). The Relationship Between Attitude to Disabled Siblings and Ratings of Behavioural Competency. Journal of Intellectual Disability Research, 36(1), 325–336, doi: 10.1111/j.1365-2788.1992.tb00531.x.
Wu, W.C.H., Chen, S.X., & Ng, J.C.K. (2020). Does Believing in Fate Facilitate Active or Avoidant Coping? The Effect of Fate Control on Coping Strategies and Mental Well-Being. International Journal of Environmental Research and Public Health, 17, doi: 10.3390/ijerph17176383.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2024 Stanisława Byra, Katarzyna Ćwirynkało
This work is licensed under a Creative Commons Attribution-NoDerivatives 4.0 International License.
Stats
Number of views and downloads: 383
Number of citations: 0
