The Effect of Training Provided to the Relatives of Stroke Patients on the Life Quality, Anxiety and Depressive Symptom Levels of Patients and Their Relatives
DOI:
https://doi.org/10.15225/PNN.2018.7.2.1Keywords
stroke, quality of life, anxiety, depression, career/caregiver training, nursingAbstract
Introduction. Stroke is a crisis for the patient relatives who are caregivers of the patient as well. The patients’ relatives need training and effective support at the stage of accepting this new responsibility.
Aim. The purpose of this study is to determine the effect of the training provided to the relatives of stroke patients on life quality, anxiety, and depressive symptoms of stroke patients and their relatives.
Material and Methods. The data were obtained from patients, who received treatment in the Stroke unit of a university hospital in Istanbul as well as from their primary caregiver relatives. While 20 patients whose stroke care/treatment continued and their relatives were assigned to the control group, 20 patients and their relatives that were trained in addition to the care/treatment were assigned to the experimental group. EuroQol Health Questionnaire, State-Trait Anxiety Inventory, and Beck Depression Inventory were used at the beginning of the study and 3 and 6 months after discharge. The data were analysed by descriptive and non-parametric tests.
Results. It was determined that there was no significant difference between the experimental and control groups in terms of health-related life quality at admission of hospital and 3 months after the discharge but 6 months after the discharge, health-related life quality of the patients in the experimental group increased statistically compared to the control group (p<0.05). It was observed that the training provided to the patients’ relatives in the experimental group had no effect on the perceived health condition, anxiety, and depression by the patients and their relatives; however, in the control group, there was an increase in the anxiety and depressive symptom level of the patients 3 and 6 months after the discharge (p<0.05).
Conclusions. The argument stating that the Patients’ Relative Training Program may enhance the quality of life following the stroke and may be effective in decreasing the anxiety and depressive symptoms of the patients and their relatives was strengthened. (JNNN 2018;7(2):56–63)
References
Benjamin E.J., Blaha M.J., Chiuve S.E. et al. Heart Disease and Stroke Statistics — 2017 Update: A Report From the American Heart Association. Circulation. 2017;135(10):e146–e603.
Öztürk Ş. Epidemiology of Cerebrovascular Diseases and Risk Factors-Perspectives of the World and Turkey. Turkish Journal of Geriatrics. 2010;13(1):51–58.
White C.L., Poissant L., Coté-LeBlanc G., Wood-Dauphinee S. Long-Term Caregiving After Stroke: The Impact on Caregivers’ Quality of Life. Journal of Neuroscience Nursing. 2006;38(5):354–360.
Forster A., Dickerson J., Young J. et al. A structured training programme for caregivers of inpatients after stroke (TRACS): a cluster randomised controlled trial and cost-effectiveness analysis. Lancet. 2013;382(9910):2069–2076.
Kısabay A., Güler A., Özakgül A., Kutluk K. Quality of Life and Its Measurement in Stroke. Turkish Journal of Neurology. 2014;20(1):29–33.
Tasocak G. Patient education. Istanbul University Issue and Publication, Istanbul 2012.
Fisher R.J., Cobley C.S., Potgieter I. et al. Is Stroke Early Supported Discharge still effective in practice? A prospective comparative study. Clin Rehabil. 2016;30(3):268–276.
Kalra L., Evans A., Perez I. et al. Training carers of stroke patients: Randomised controlled trial. British Medical Journal. 2004;328:1099–1103.
Smith J., Forster A., Young J., Cochrane Group for information provision after stroke. Cochrane review: information provision for stroke patients and their caregivers. Clin Rehabil. 2009;23(3):195–206.
Bakas T., McCarthy M., Miller E.T. Update on the State of the Evidence for Stroke Family Caregiver and Dyad Interventions. Stroke. 2017;48(5):e122–e125.
Legg L.A., Quinn T.J., Mahmood F. et al. Non-pharmacological interventions for caregivers of stroke survivors. Cochrane Database Syst Rev. 2011;10:CD008179.
Küçükdeveci A.A. Quality of Life in Rehabilitation. Turk J Phys Med Rehab. 2005;51(Suppl B):23–29.
Krabbe P., ve Weijnen T. Guidelines for analysing and reporting EQ-5D outcomes. In Brooks R., Rabin R., de Charro F. (Eds.), The Measurement and Valuation of Health Status Using EQ-5D: A European Perspective. Kluwer Academic Publishers, London 2003;7–19.
Aydemir Ö., Köroğlu E. (Eds.), Psikiyatride Kullanılan Klinik Ölçekler. HYB — Hekimler Yayın Birliği, Ankara 2000;121–161.
Spielberger Ch.D., Gorsuch R., Lushene R.E. The State-Trait Anxiety Inventory (Test Manual). CA: Consulting Psychologists Press, Palo Alto 1970.
Öner N., Le Compte A. The State/Trait Anxiety Inventory Handbook. (2nd). Boğaziçi University Publishing House, Istanbul 1998.
Roper N., Logan W.W., Tierney A.J. The Elements of Nursing. A Model for Nursing Based on a Model of Living. (Fourth Edition). Churchill Livingstone, Edinburgh 1996.
Clark M.S., Rubenach S., Winsor A. A randomized controlled trial of an education and counselling intervention for families after stroke. Clin Rehabil. 2003;17(7):703–712.
Smith J., Forster A., Young J. A randomized trial to evaluate an education programme for patients and carers after stroke. Clin Rehabil. 2004;18(7):726–736.
Hoffmann T., McKenna K., Worrall L., Read S.J. Randomised trial of a computer-generated tailored written education package for patients following stroke. Age Ageing. 2007;36(3):280–286.
Rodin M., Saliba D., Brummel-Smith K., American Geriatrics Society Clinical Practice Committee, Department of Veterans Affairs/Department of Defense. Guidelines abstracted from the Department of Veterans Affairs/Department of Defense clinical practice guideline for the management of stroke rehabilitation. J Am Geriatr Soc. 2006;54(1):158–162.
Larson J., Franzén-Dahlin A., Billing E., Arbin M., Murray V., Wredling R. The impact of a nurse-led support and education programme for spouses of stroke patients: a randomized controlled trial. J Clin Nurs. 2005;14(8):995–1003.
McCullagh E., Brigstocke G., Donaldson N., Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 2005;36(10):2181–2186.
Michael A., D’silva F. Effectiveness of Caregiver Support Program (CSP) on Burden and QoL of Caregivers of Stroke Subjects. International Journal of Nursing Education. 2017;9(1):1–6.
Forster A., Dickerson J., Young J. et al. A cluster randomised controlled trial and economic evaluation of a structured training programme for caregivers of inpatients after stroke: the TRACS trial. Health Technol Assess. 2013;17(46):1–216.
Pickard A.S., Johnson J.A., Feeny D.H. Responsiveness of generic health-related quality of life measures in stroke. Qual Life Res. 2005;14(1):207–219.
Eser E. 2. Sağlıkta Yaşam Kalitesi Kongresi. Klinik uygulamada yaşam kalitesi ölçeklerinin kullanımı, 5–7 Nisan, İzmir 2007.
Franzén-Dahlin A., Larson J., Murray V., Wredling R., Billing E. A randomized controlled trial evaluating the effect of a support and education programme for spouses of people affected by stroke. Clin Rehabil. 2008;22(8):722–730.
Lowe D.B., Sharma A.K., Leathley M.J. The CareFile Project: a feasibility study to examine the effects of an individualised information booklet on patients after stroke. Age Ageing. 2007;36(1):83–89.
Altınbaş K., Oral E.T., Soysal A., Arpacı B. İnme sonrası depresyon. J Clin Psy. 2006;9(3):148–153.
Brereton L., Carroll C., Barnston S. Interventions for adult family carers of people who have had a stroke: a systematic review. Clin Rehabil. 2007;21(10):867–884.
Burton C., Gibbon B. Expanding the role of the stroke nurse: a pragmatic clinical trial. J Adv Nurs. 2005;52(6):640–650.
Schure L.M., van den Heuvel E.T., Stewart R.E., Sanderman R., de Witte L.P., Meyboom-de Jong B. Beyond stroke: description and evaluation of an effective intervention to support family caregivers of stroke patients. Patient Educ Couns. 2006;62(1):46–55.
Downloads
Published
How to Cite
Issue
Section
License
This work is licensed under a Creative Commons Attribution-NoDerivatives 4.0 International License.
Stats
Number of views and downloads: 138
Number of citations: 0