Prisoners of Care: The Experience of Loneliness among Caregivers of Individuals with Alzheimer’s Disease
DOI:
https://doi.org/10.12775/PCh.2020.011Słowa kluczowe
choroba Alzheimera, opiekunowie, samotnośćAbstrakt
Więźniowie opieki: doświadczenie samotności pośród opiekunów osób cierpiących na chorobę Alzheimera
Przystosowanie się do choroby Alzheimera jest złożonym procesem. Opiekunowie doświadczają samotności i izolacji, co może niekorzystnie wpływać na ich samopoczucie. Mimo iż negatywny wpływ, jaki może wywrzeć sprawowanie opieki na zdrowie psychiczne i fizyczne, został potwierdzony w wielu badaniach, nie udało się jeszcze uzyskać kompleksowego portretu opiekuna i jego doświadczeń, zwłaszcza jeśli chodzi o doświadczenie samotności i izolacji społecznej. Samotność pozostaje zaniedbanym aspektem doświadczenia opiekuńczego. Wyniki tego badania oferują ważne informacje na temat doświadczenia w opiece zarówno dla psychologów, jak i innych osób zaangażowanych w pomoc osobom starszym.
Bibliografia
Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S. & Lachs, M. S. (2014). Caregiver Burden: A Clinical Review. JAMA, 311(10), 1052–1060. DOI:10.1001/jama.2014.304
Alzheimer’s Association (2019). Alzheimer’s Disease Facts and Figures. Alzheimer’s and Dementia, 15(3), 321-387.
Ayalon, L., Shiovitz-Ezra, S. & Palgi, Y. (2013). Associations of loneliness in older married men and women. Aging & Mental Health, 17(1), 33-39. DOI:10.1080/13607863.2012.702725
Boyatzis, R. E. (1998). Transforming qualitative information: Thematic analysis and code development. Thousand Oaks, CA: Sage Publications, Inc.
Brodaty, H. & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in clinical neuroscience, 11(2), 217–228.
De Frias, C. M., Tuokko, H. & Rosenberg, T. (2005). Caregiver physical and mental health predicts reactions to caregiving. Aging and Mental Health, 9(4), 331-336. DOI: 10.1080/13607860500089674.
De Vugt, M. E., Stevens, F., Aalten, P., Lousberg, R., Jaspers, N., Winkens, I., … Verhey, F. R. J. (2003). Behavioural disturbances in dementia patients and quality of the marital relationship. International Journal of Geriatric Psychiatry, 18(2), 149-154. https://doi.org/10.1002/gps.807.
Fauth, E. B., Femia, E. E. & Zarit, S. H. (2016). Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: associations with informal caregivers’ stress and well-being. Aging and Mental Health, 20(9), 888–898. DOI:10.1080/13607863.2015.1049114.
Grunfeld, E., Coyle, D., Whelan, T., Clinch, J., Reyno, L., Earle, C. C., … Glossop, R. (2004). Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ: Canadian Medical Association Journal (journal de l’Association medicale Canadienne), 170(12), 1795–1801. DOI:10.1503/cmaj.1031205.
Holt-Lunstad, J., Smith, T. B. & Layton, J. B. (2010). Social Relationships and Mortality Risk: A Meta-analytic Review. PLoS Medicine, 7(7), e1000316. https://doi.org/10.1371/journal.pmed.1000316.
Karantzoulis, S. & Galvin, J. E. (2011). Distinguishing Alzheimer’s disease from other major forms of dementia. Expert Review of Neurotherapeutics, 11(11), 1579–1591. DOI:10.1586/ern.11.155.
Lavretsky, H. (2005). Stress and depression in informal family caregivers of patients with Alzheimer’s disease. Aging Health 1(1), 117-133. https://doi.org/10.2217/1745509X.1.1.117.
Lee, K., Martin, P. & Poon, L. W. (2017). Predictors of caregiving burden: impact of subjective health, negative affect, and loneliness of octogenarians and centenarians. Aging and Mental Health, 21(1), 1214-1221. https://doi.org/10.1080/13607863.2016.1206512
Lepore, M., Ferrell, A. & Wiener, J. M. (2017). Living Arrangements of People with Alzheimer’s Disease and Related Dementias: Implications for Services and Supports. Research Summit on Dementia Care. https://aspe.hhs.gov/system/files/pdf/257966/LivingArran.pdf
Levinger, G. & Huston, T. L. (1990). The social psychology of marriage. In T. Bradbury & F. Fincham (Eds.), The Psychology of Marriage (pp. 19-58). New York, NY: Guilford Press.
Nieminen, T., Prättälä, R., Martelin, T., Härkänen, T., Hyyppä, M. T., Alanen, E. & Koskinen, S. (2013). Social capital, health behaviours and health: a population-based associational study. BMC public health, 13, 613. DOI:10.1186/1471-2458-13-613.
Perlman, D. & Peplau, L. A. (1981). Toward a Social Psychology of Loneliness. In: S. Duck & R. Gilmour (eds.), Personal Relationships in Disorder (pp. 31–56). London, UK: Academic Press.
Pinquart, M. & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250-267. http://dx.doi.org/10.1037/0882-7974.18.2.250.
Prince, M., Bryce, R., Albanese, E., Wimo, A., Ribeiro, W. & Ferri, C. P. (2013). The global prevalence of dementia: a systematic review and metaanalysis. Alzheimer’s & Dementia, 9, 63–75. e62. DOI: 10.1016/j.jalz.2012.11.007.
Rafnsson, S. B., Orrell, M., d’Orsi, E., Hogervorst, E. & Steptoe, A. (2017). Loneliness, Social Integration, and Incident Dementia Over 6 Years: Prospective Findings From the English Longitudinal Study of Ageing. The Journals of Gerontology: Series B, gbx087, https://doi.org/10.1093/geronb/gbx087.
Richard, A., Rohrmann, S., Vandeleur, C. L., Schmid, M., Barth, J. & Eichholzer, M. (2017). Loneliness is adversely associated with physical and mental health and lifestyle factors: Results from a Swiss national survey. PLoS ONE 12(7), e0181442. https://doi.org/10.1371/journal.pone.0181442
Rokach, A. (2012). Loneliness Updated: An Introduction. The Journal of Psychology, 146(1-2), 1-6. DOI: 10.1080/00223980.2012.629501.
Saumure, K. & Given, L. M. (2008). Convenience sample. In L. M. Given (ed.), The Sage Encyclopedia of Qualitative Research Methods (pp. 124-125). Thousand Oaks, CA: Sage Publications.
Schulz, R. & Eden, J. (2016). Families Caring for an Aging America. Washington (DC): National Academies Press (US). Retrieved from: https://www.ncbi.nlm.nih.gov/books/NBK396398/.
Sharma, N., Chakrabarti, S. & Grover, S. (2016). Gender differences in caregiving among family - caregivers of people with mental illnesses. World Journal of Psychiatry, 6(1), 717. DOI:10.5498/wjp.v6.i1.7
Singleton, D., Mukadam, N., Livingston, G. & Sommerlad, A. (2017). How people with dementia and carers understand and react to social functioning changes in mild dementia: a UK-based qualitative study. BMJ open 7(7), e016740. DOI:10.1136/bmjopen 2017-016740
Skira, M. M. (2015). Dynamic wage and employment effects of elder parent care. International Economic Review, 56(1), 63–93. https://doi.org/10.1111/iere.12095
Victor, C., Scambler, S., Bond, J. & Bowling, A. (2000). Being alone in later life: Loneliness, social isolation and living alone. Reviews in Clinical Gerontology, 10, 407–417. https://doi.org/10.1017/S0959259800104101
Vitaliano, P. P., Zhang, J. & Scanlan, J. M. (2003). Is caregiving hazardous to one’s physical health? A meta-analysis. Psychological Bulletin, 129, 946–972. DOI: 10.1037/00332909.129.6.946
Waring, E. M. & Chelune, G. J. (1983). Marital intimacy and self-disclosure. Journal of Clinical Psychology, 39(2), 183-190. http://dx.doi.org/10.1002/10974679(198303)39:2<183::AIDJCLP2270390206>3.0.CO;2-L
Waring, E. M., Patton, D., Neron, C. A. & Linker, W. (1986). Types of marital intimacy and prevalence of emotional illness. Canadian Journal of Psychiatry, 31(8), 720–725. DOI: 10.1177/070674378603100805
Weiss, R. S. (1973). Loneliness: The experience of emotional and social isolation. Cambridge, MA: The MIT Press.
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