Self-efficacy of an author of a blog who suffers from SMA. Categorical Analysis of the narrative

Abstract

Self-efficacy is one of the most important categories of health pedagogy. It is associated with one’s ability to cope with a disease (Byra 2011), the image of a disease (Byra 2014), motivation to act and persistence in pursuing the goal (Ogińska-Bulik). The research conducted so far shows that self-efficacy strengthens the awareness of one’s own strengths and weaknesses, and what actually matters is not so much the results of the actions taken as the belief that the task can be met (Goleman 1999). The conducted research concerned the self-efficacy of a person suffering from SMA, who is unable to perform self-service activities. The research method used is the Categorical Analysis developed by Anna Walulik and Zbigniew Marek (2019). The qualitative research was based on the interpretation of the narrative of a blog run by a PhD student suffering from spinal muscular atrophy. Their aim was to show the patient’s experiences, who, despite the difficulties, is characterized by self-efficacy based on the awareness of his strengths, faith and sense of agency. In achieving such a state he was helped by relatives but his own activity in the field of education and writing a blog were vital. The collected results may be helpful in constructing educational tools for medical personnel and assistants of the disabled, and in designing activities aimed at strengthening the resources of disabled people.