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Medical and Biological Sciences

Quality of Life in Children With Epilepsy, Evaluated by the Parents on the Basis of Qolce Questionnaire
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Quality of Life in Children With Epilepsy, Evaluated by the Parents on the Basis of Qolce Questionnaire

Authors

  • Mirosława Felsmann Department of Pedagogy and Nursing Didactics, Nicolaus Copernicus University, Collegium Medicum in Bydgoszcz
  • Barbara Futyma Department of Pedagogy and Nursing Didactics, Nicolaus Copernicus University, Collegium Medicum in Bydgoszcz
  • Mariusz Zbigniew Felsmann Department of Pedagogy and Nursing Didactics, Nicolaus Copernicus University, Collegium Medicum in Bydgoszcz
  • Marzena Anna Humańska Department of Pedagogy and Nursing Didactics, Nicolaus Copernicus University, Collegium Medicum in Bydgoszcz
  • Beata Haor Department of Pedagogy and Nursing Didactics, Nicolaus Copernicus University, Collegium Medicum in Bydgoszcz

DOI:

https://doi.org/10.12775/4098

Keywords

epilepsy in children, quality of life

Abstract

Epilepsy is a neurological chronic disease, which may negatively influence physical, psychological and social functioning. This problem mainly refers to children with epilepsy in whom, as the research proves, a number of common problems appears, not only those related to epileptic seizures, but also problems connected with cognitive sphere and difficulties at school, as well as social stigma among peers.

In the last years, the researches evaluating the quality of life in children with epilepsy have been focused on its complex evaluation. Therefore, adequate measuring tools have been looked for in order to make this evaluation possible.

In the research, evaluation of the quality of life was made in a group of 43 children with epilepsy, with the use of QOLCE questionnaire, adapted to Polish conditions by a team directed by K. Mathiak.

Most of 16 subscales showed a high and very high reliability according to Cronbach's α from 0.734 to 0.942. These results point to existence of significant dependence between individual spheres of children's functioning. In the authors' opinion, it is worth to compare parents' evaluation with opinions of children, especially elder ones.

References

Ronen G.M, Streiner D.L, Rosenbaum P.: Healthrelated quality of life in childhood epilepsy: Moving beyond ‘seizure control with minimal adverse effects’. Health and Quality of life Outcomes. 2003, 1,36.

Służewski W.: Epilepsy in childhood - clinical view and treatment. Guide for GPs 2001, 4,3, 80-84.

Jones M. W.: Consequences of epilepsy. Why do we treat seizures? Can J Neurol Sci 1998, 25; 24-26.

Schachster SC.: Epilepsy: Quality of life and cost of care. Epilepsy behaviour 2000, 1:120-127.

Mathiak K et al.: Questionnaire on the Quality of Life in Child's Epilepsy. Polish adaptation and validation of the questionnaire Heath-Related Quality of Life in Childhood Epilepsy Questionnaire. Polish Neurology and Neurosurgery 2007, 41, 3: 203-214.

Tettenbaum B, Kramer G.: Total patient care in epilepsy. Epilepsy 1992, 33(suppl1):S 28-32.

Austin J. K., Shafer P. D., Dering J. B.: Epilepsy familiarity, knowledge, and perceptions of stigma: Report from survey of adolescents in the general population. Epilepsy Behavior 2002, 3:368-375.

Mojs E., Głowacka M. D. Samborski Wł.: Appearance of Cognitive Disorders and Emotions in Epilepsy and Their Implications in Therapy. Annales Academiae Medicae Stetinensis. 2007, 53,3, 82-87.

Hoare P, Russell M.: The quality of life of children with chronic epilepsy and their families: Preliminary Findings with a new assessment measure. Dev med Child Neurol 1995, 37:689-696. http://www.ncbi.nlm.nih.gov/pubmed/7672466

Baker G. A. et al.: Quality of life of people with epilepsy: A European Study. Epilepsia, 1997, 38 (3), 353-362. DOI: http://dx.doi.org/10.1111/j.1528-1157.1997.tb01128.x, http://www.ncbi.nlm.nih.gov/pubmed/9070599

Loring D. W. Kimford J. M.: Cognitive side effects of antiepileptic drugs in children. Neurology, 2004, 62, 872-877. DOI: http://dx.doi.org/10.1212/01.WNL.0000115653.82763.07, http://www.ncbi.nlm.nih.gov/pubmed/15037684

Talarska D.: The Quality of Life in Children with Epilepsy on the Basis of QOLCE questionnaire. Polish Family Practice Medicine, 2004, 6. Suppl.1, 42-44.

Mojs E. Evaluation of cognitive functions at children and adolescents with epilepsy, treated with lamotrygine or vigabatrin in a system of mono- or poly-therapy. Epileptology, 2001, 2, 143-167.

Medical and Biological Sciences

Published

2012-07-01

How to Cite

1.
FELSMANN, Mirosława, FUTYMA, Barbara, FELSMANN, Mariusz Zbigniew, HUMAŃSKA, Marzena Anna and HAOR, Beata. Quality of Life in Children With Epilepsy, Evaluated by the Parents on the Basis of Qolce Questionnaire. Medical and Biological Sciences. Online. 1 July 2012. Vol. 26, no. 1, pp. 99-105. [Accessed 1 January 2026]. DOI 10.12775/4098.
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Vol. 26 No. 1 (2012)

Section

Selected articles presented during the 2nd International Conference „Europejski Wymiar Nauk o Zdrowiu”

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